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Overview
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Whether you’re a newly diagnosed Mesothelioma patient, a survivor, or a friend or relative of either, this book offers help. Completely revised and updated for this second edition, this is the only book to provide the doctor’s and patient’s views. 100 Questions & Answers About Mesothelioma, Second Edition gives you authoritative, practical answers to your questions about treatment options, post-treatment quality of life, sources of support, legal options, and much more. This outstanding team of authors–led by a world-class lung disease expert and including an insider’s comments from the wife and caregiver of a patient, provides an invaluable resource for anyone coping with the physical and emotional turmoil of this frightening disease.
Features of 100 Questions & Answers About Mesothelioma 2nd Edition PDF
Here’s a quick overview of the essential features of this book:
Table of Contents
Below is the complete table of contents offered inside 100 Questions & Answers About Mesothelioma 2nd Edition PDF:
Part 1 The Basics 1
Questions 1-7 address fundamental questions about mesothelioma, including the following:
1 What is mesothelioma?
2 Are there different types of mesotheliomas?
3 What are the pleura?
4 What are the risk factors, or who gets mesothelioma?
5 What causes mesothelioma?
6 Can mesothelioma be prevented?
7 What is asbestos?
Part 2 Diagnosis 11
Questions 8-19 explain the methods used to detect and identify mesothelioma and the healthcare professionals involved in your diagnosis:
8 What are the symptoms of mesothelioma?
9 How is mesothelioma diagnosed?
10 Are blood tests useful to diagnose mesothelioma?
11 What tests are performed to help diagnose mesothelioma?
12 How are biopsies performed, and which biopsy is best for me?
13 How will I learn about my biopsy results, and how can I be sure the diagnosis is mesothelioma?
14 I have been given a diagnosis of mesothelioma. Since this is a rare disease, how do I know that my physicians have enough experience with the disease to treat me?
15 Should I get a second opinion?
16 How do I go about getting a second opinion?
17 Who treats mesothelioma?
18 How do I find the best doctors to treat my mesothelioma?
19 What can I do to make my doctor visits as productive as possible?
Part 3 Coping 33
Questions 20-23 provide practical advice for dealing with the physical, emotional, and financial issues raised by a diagnosis of mesothelioma:
20 What types of psychosocial support are available to me?
21 What should my family know about mesothelioma in order to assist me?
22 What insurance and financial concerns do I need to address following a mesothelioma diagnosis?
23 What should I know about medical records, and how do I manage them?
Part 4 Legal Matters: Always Leave It to the Experts 41
Questions 24-32 discuss legal dimensions of the disease:
24 Why do people with mesothelioma file legal claims?
25 How do I file a timely claim?
26 How do I choose an attorney?
27 Is financial assistance available, and what are my legal options?
28 What other kinds of assistance are available to me?
29 How does the claims process work?
30 Should I take this to a trial or settle without a trial?
31 What other legal issues do I need to know about?
32 What other important papers should I have available for my loved ones?
Part 5 Treatment 67
Questions 33-65 provide an extensive description of therapy currently employed to treat mesothelioma:
33 I have been successful in being referred to a mesothelioma treatment center. What can I expect now?
34 Who are the members of my healthcare team?
35 What is staging, and why is it important?
36 What are the stages of mesothelioma based on the IASLC/IMIG Staging System?
37 How does mesothelioma spread?
38 What is my prognosis?
39 What are the survival rates for mesothelioma?
40 What do these scary survival rates mean to me as a patient?
41 What is palliative care?
42 What, in general, are the treatment options for mesothelioma?
43 What is performance status, and why is it important?
44 What surgery is performed for mesothelioma?
45 What determines whether I am able to have surgery?
46 What determines which surgical procedure I will have?
47 What can I expect before surgery, and what can I do to prepare for it?
48 What tests will I need before surgery to define what procedure I can tolerate?
49 What should I expect following my surgery? What are the common complications of surgery for mesothelioma?
50 What is immunotherapy? How does it work?
51 What are the common side effects of immunotherapy?
52 What can I expect during immunotherapy? How many treatments will I need?
53 What is chemotherapy? How does it work?
54 What can I expect during chemotherapy? How many treatments will I need?
55 Why are blood tests ordered during my chemotherapy treatment? What are blood counts, and what should I know about them?
56 What are the common side effects of chemotherapy?
57 What is radiation therapy?
58 How does radiation work?
59 What is a dose of radiation, and how many treatments will I need?
60 What equipment is used to deliver radiation?
61 What can I expect during radiation?
62 What is the actual radiation procedure like?
63 How long does each treatment take?
64 What are the common side effects of radiation?
65 What are tumor treatment fields?
Part 6 Decision Making 127
Questions 66-75 try to help guide you toward the best decisions for your circumstance:
66 What are the standard treatment options for mesothelioma?
67 What if I have had first- and second-line therapies? What next?
68 What are clinical trials?
69 How do I learn about clinical trials, and how do I decide whether a trial is right for me?
70 What if I don’t qualify for a clinical trial?
71 What are some experimental or investigational treatments for mesothelioma?
72 What are alternative and complementary therapies and what should I know about them?
73 How do I decide on a treatment plan when faced with multiple options?
74 How do I know if my treatment is working?
75 What if my disease has remained stable during treatment?
Part 7 Side Effects of Therapy 147
Questions 76-90 advise what to expect with regard to treatment side effects and what to do about them:
76 Why am I always tired? What can I do for fatigue? Will the fatigue go away after my treatment is over? Could I be depressed?
77 What can I do about my shortness of breath?
78 What can I do to relieve my pain?
79 What can I do to prevent or relieve constipation?
80 Am I at risk for a blood clot? What is a pulmonary embolism?
81 Will I have terrible nausea and vomiting if I receive chemotherapy?
82 Will I lose my hair during chemotherapy or radiation?
83 Is my cough something I should worry about?
84 What can I do if I have lost my appetite?
85 Are there long-term side effects from treatment?
86 How should I change my diet following a mesothelioma diagnosis? Should I take dietary supplements? Can diet affect my survival?
87 What are the benefits of exercise for mesothelioma patients?
88 What about returning to work?
89 What about follow-up care? How often should I be seen?
90 Should I get a flu shot or pneumonia vaccine? What about the COVID-19 vaccine?
Part 8 Recurrence of the Disease 171
Questions 91-93 offer strategies for facing recurrence:
91 What happens if my disease recurs?
92 Where is my disease likely to recur?
93 How is recurrence treated?
Part 9 Sarah’s and Sarah Ann’s Insights for Care Providers 177
Questions 94-98, written by the wife and daughter of a mesothelioma patient, provide an “insider’s” perspective on coping as a caregiver:
94 How do I discuss mesothelioma with children?
95 Where do I turn for support in dealing with my own stress and anxiety and what about those inevitable middle of the night situations when my loved one is in pain or has other medical complications?
96 How do I maintain a normal life when a family member has mesothelioma, and how do I balance all my responsibilities?
97 What else can I do to make my loved one comfortable?
98 How can family and friends help without intruding and what specifically can they do to help?
Part 10 The Unspeakable That Must Be Spoken 189
Questions 99-100 address end-of-life care:
99 How do I decide when it’s time to stop treatment?
100 What is hospice?
Appendix 197
Glossary 201
Index 213
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